Friday, February 6, 2015

Another Update


It is six o'clock in the morning here in the California mountains, temperature somewhere in the mid-20s, it's difficult to see without a flashlight. Faith woke me up with ear licks at 4:30, which was good since my blood sugars were low and I needed to eat. Breakfast in bed: Coffee, oatmeal with walnuts, a banana (I can only eat them when my sugars are low, so a treat today), all sprinkled with cinnamon. 


I saw reflections of a sunset the other day and took these pictures. Before I give you an update on hubby, I want to say: Thank You, once again for being there for me, for being so caring and supportive. I have a busy day ahead, so I need to keep this short, not edit myself into perfection, and move on with my day, to do this: 



Walk dogs, vacuum bedroom, dust same, put on clean sheets, duvet, and blankets (washed them all yesterday). Then check oil in Jeep, add oil if needed (yes, oil leak looming), balance check book, write three checks, write shopping list, shower, and change insulin in pump. After that, I will probably eat some lunch, then pack small white trash bags in large black bags, put in Jeep and drive to the trash disposal place, aka the dump, and then the rest of the 15 miles to stores and post office in our town. So that was way too long, already, so on with it.... Why is it so difficult to be concise?


My husband has a place on UCLA's web where they post test results. Yesterday, finally, the results of all his blood tests showed up. And the only problems I saw were related to his liver, one that sounded like it had to do with bile. I became familiar with tumor markers after my bout with breast cancer, so I anxiosly looked for those. When I found them, I was thrilled to see they were the same as last fall. Normal was 6 point something and his was 3. 4. A disclaimer stated that this does not mean there's no cancer, but for now I will take it as a very good indicator. 


If all went as planned he had the video test yesterday. When he first said they were going to video him, I said, "what?" Found out that the scope they insert down his throat will indeed video his liver and other areas of interest. Amazing what they can do these days. 


My husband is feeling much better since he now has a special person managing his pain, which has been so horrible. His voice is stronger, he is enjoying phone calls from relatives and friends, and as it turns out, his new friend Matt from the ER (I mentioned him in my previous post) had a procedure done and ended up in the room next to my husband's, so they had a chance to visit. And Matt bought him a back scratcher as a goodbye gift before he went home.



I have no good pictures of the dogs. Faith looks like the lab cross she is, but has such short legs. She has lost some respect for me because I can't help but giggle at her antics, she's just so hilarious! But now it's getting out of control, so I have started to work with her. Samson was much more serious and just naturally sweet as he grew up. Faith is very sweet too, once she calms down, but her excitement level is about 50 times that of Samson's when he was her age. 

I don't know when my husband will be discharged or when they will do the stent procedure, or/if they will be able to diagnose all his problems. I hope they will be able to heal everything that caused this horrible pain, blockage and anything else they may find. 

One more thing, UCLA's liver transplant team has visited him and discussed a transplant with him. Last fall, he was so overwhelmed with the complexities of it all that he decided he didn't want one. He may have changed his mind. 

And now it's 7:15. so much for a short update! Have a nice day, everyone. 




37 comments:

  1. Inger, you are doing so amazingly well -- keeping focused and letting life go on. You really are an example of taking a very difficult time and getting through it and still appreciating the beautiful things in your life. I read with a great deal of relief the positive results of your husbands markers. Even though there is more to discover and much for him to consider it is obvious that together you will be able to face whatever challenges lie ahead.

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  2. How lovely that your husband met a friend whilst at the hospital, it always helps when there are nice people to talk to. I am glad to hear he is sounding stronger and feeling a bit better. Let's hope it won't be long until he is discharged and back home with you and the dogs, but until then I wish him well, and I hope you are not feeling too lonely all on your own.

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  3. really good to know the indicators still look well below concerning level. glad he's feeling better. sure hope they can unblock his bile ducts! faith is adorable. :)

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  4. Making hospital friends can be life-changing. Mom made a good friend she stayed close to for all that person's life. My, you have a lot to do. Pace yourself. Don't let Faith take advantage of you now! It is so great that your husband has a new person to help with his pain. I will pray for improved health and strength both for your husband and for you!! :-)

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  5. Test results on line, puppy wake-up licks, and a fine day for all laundry. Are you staying at home today? A transplant team coming to talk. You sound happier, just as I do when things get sorted to a better pain level, markers looking better, a next-door room mate for company, all round higher up the scale of not quite happiness but getting something close to it. Here we had 6 Celsius this morning, after days of 20C plus overnight!!! Winter looms. Take care Inger, if you have to drive all that way again soon. Heaps of hugs and love, Jean.

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  6. The test results sound good! Keep up your faith. Hope he is home soon

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  7. wow on the busy bee syndrome, that list of to do stuff wore me out just thinking about it. i am happy for you about the tumor and being able to see it online... and i hope they can do a liver transplant that will put him back to his old self, that is of course if he decides to.. thanks for the update. hang in there

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  8. It sounds as if you have enough energy for the both of you, which is important. It is always a good feeling when you feel as if something is being done, and more than one medical person is working on getting your husband better. Dogs are wonderful therapy. And you have your own in-house therapy dogs!

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  9. Åh så mycket du har runt om kring dig nu ,många bekymmer .Jag har också många bekymmer med mina föräldrar .Pappa som fick en stroke för snart 2 år sedan kan inte prata , har problem med minnet och epilepsi bland annat .Han bor på ett service boende .Mamma bor 20 km ifrån pappa (60 km ifrån mig) hon har Parkinsons sjukdom och altzheimer ,hon var inte så bra idag när vi var och hälsade på .Vi ska nu börja tömma deras hus ,då vi ska sälja det så mycket jobb för mig som inte har några syskon .Men jag hoppas jag orkar har själv artros och värk i hela kroppen .Jag hoppas allt går bra för dig ,Nette

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  10. Keeping up hope for you that your husband doesn't have cancer. And hope for pain alleviation, which can be so difficult. There is so much that doctors, being mere mortals also, can't fix. But there is a lot these days they CAN do, or try to do. Liver transplant for one thing. You do indeed have a lot on your plate, and "I" sincerely hope that you will have the strength you need to endure, both for yourself and your husband. You're on my blogroll so I can clearly see when you post an update! Take care....

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  11. That's great that you can go online to get the test results. Take care of yourself sweet friend. I'm keeping you both in my prayers. Hugs, Diane

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  12. All the above comments said what I wanted to say...it is a "word day" when migraines shut that part of my brain down. Keep well, keeping hoping, keep going....

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  13. All this sounds very promising and hopeful. I am so glad and will check back for more updates!

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  14. So far the results sound positive for your husband and I am so happy they are controlling his pain. How nice he got to enjoy his new friend Matt. Hope he gets that stent soon and is home once more.
    You mentioned that Faith woke you and your realized your sugar was low? I have heard dogs can be trained to recognize that in diabetic patients. Perhaps she is a natural?

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  15. I am sorry to hear about all this happening with your guy. Keep taking care of yourself, too, though. Hugs! Hyper dogs? Never. No idea what you are- DOWN, RUDEE! Nope, not an idea...

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  16. Maybe Faith woke you up because she sensed you needed to eat.

    Love,
    Janie

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  17. It is good to know that your husband's health is better.
    Low blood sugar can make us lethargic. Good thing Faith woke you up. Please be careful.

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  18. Sounds like you had a busy day planned.
    Thanks for the update on your husband. Glad to hear he is feeling a bit better. Still praying that all goes well.

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  19. Great to know you are taking care of yourself, the dogs and your hubby You sound in great spirits and should be with a silly pooch and a healing hubby!...:)JP

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  20. Your doggy is just so pretty. I hope all works out well for your DH.

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  21. I used your story of the time in the ER and the way the comforting arm on your shoulder made such a difference in a meeting at work today. We were talking about empathy and the role it plays in healing - and it 's importance to patients and their families. I hope you don't mind (no names were used -- I said "My friend had this experience..."

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  22. So sorry to hear that your husband is in hospital again. I'm sure you appreciate that he is in the best place for him right now so all you can do is take strength from that. Was it a coincidence that you were woken by ear licks when your levels were low do you think? Do the dogs know? I've heard that dogs can tell that sort of thing. Take care Love xxx

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  23. Good things in this post. Your lists and routines will keep you busy and steady and that is a good thing. I know how high energy that pup must be. Good luck harnessing that. Continued prayers for you both.

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  24. Those pictures are beautiful...so different from here, but beautiful all the same! Glad you're husband is feeling better; I can't imagine how awful it must be to live with daily pain.

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  25. Good news indeed and things sound hopeful, Inger.
    Your area is so beautiful and photos certainly reflect the beauty.
    Now look at Faith! What a beauty!

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  26. I am glad things are looking up.

    I am also glad you are a survivor, this will will your husband, too.

    Thanks for your comments. We were there to have my sister's six month check up and she is clear.

    I tend to have a "sensitive" nature around people and some places. I could not handle the "heaviness" in the waiting room. I waited in the truck and this poem came out pretty much the way it is.

    Blessings to you and your husband.

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  27. Conciseness never works when you are in a hurry(that's the way it is with me).......I always find something else to talk about or in the case of heading for the car remembering that I need my pillow for the car + many other things I have left on the kitchen table. Ahh life!!

    Thinking about you and your hubby.....be strong !

    Ron

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  28. Thank you for the update and for the beautiful pictures. You are holding things together so well in a trying situation. Blessings to you and your husband.

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  29. That is a lot to assimilate - I am going to pray for God's guidance and healing. It sure sounds like great news to me. I hope so.

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  30. That sounds very positive. You seem to be holding up well. Must be your Viking heritage. Tough people, those. Your list of chores sounds as convoluted as mine!

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  31. Dear Inger, thanks on your update from your husband.
    I am so glad that your husband is feeling much better!
    Sounds like you had a very busy day. I can see that you have much energy and vigor and its is very good.
    Love your photos as always. What a gorgeous blue sky!
    Faith is really adorable!
    Have a nice Sunday!

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  32. Dear Inger, that is some good news and it is good to hear your husband is feeling better. I am sure you are as well. So many errands.... you definitely need a to do list. Love the blue skies and Faith's photo. I am fostering a 7 months old kitty, she had knee surgery, and I think Faith and her would be just right for each other, they would definitely tire each other out :)
    Hugs, Sandra

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  33. Glad his indicators look good - and that his pain is managed better. I love your photos - always do - and your cute little Faith.

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  34. The photos show a place of beautiful desolation where you are. I wish you and your husband well with the health issues.

    Arlee Bird
    A to Z Challenge Co-host
    Tossing It Out

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  35. Hi Inger, beautiful photos. Glad to hear your husbands pain is managed better, sending hugs your way!

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  36. Dearest Inger - I'm so sorry that the hospital is so far away - the waiting cannot have been easy ... reading what is going on almost 2 weeks later is not easy .... all I can say is I sincerely hope friends and relatives are around to help you through ... the dogs will be wonderful ... with much love and hugs - Hilary

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Thanks for leaving a comment.. ~~ Inger

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