Saturday, February 28, 2015

The Good ~ The Bad ~ And The Latest Update



The best news is that my husband has been placed on the liver transplant waiting list. The good news is that he is at the top of the list, and one of the first available matching livers (they go by blood type) will be his once they get the infection under control. 


The United Network for Organ Sharing (UNOS) has a scale for patients with end-stage liver disease, called MELD, where 6 is less ill and 40 is gravely ill. The bad news is that hubby's score was 48 yesterday when the transplant coordinator called to let me know he is now on the list. 


I just called the hospital. Debra was there with her daughter and grandson. She told me that they will insert yet another stent or drain this afternoon to try to conquer his very stubborn infection. 


After the procedure, they plan to move hubby to the liver specialty suite on the eight floor, where there is another ICU, and where liver patients will get the best care. It is clear that they are fighting hard to save my husband's life. Today it is two weeks since Kenny and I took him to the ER. So my husband has been fighting hard as well.  


Today is also Faith's 10-month birthday! Happy Birthday to you, you little bundle of energy you!



As for me, I'm exhausted. I fell asleep on the couch with Faith after lunch. This morning, I skipped my walk with the dogs and instead started to go through boxes that hubby brought with him when he retired and moved here in 2011. He has a difficult time parting with things and, although I have wanted to do something with it, I knew it would take forever with him around. 


So instead of moving boxes from the bedroom to storage, I went through two this morning and threw away most of the contents. I have four left, two are nice containers, the other two cardboard boxes. All collecting dust in the bedroom. I know a pristine environment is a must after a transplant, so there's my excuse. But I really think that he would be touched and pleased. 


We were supposed to get some snow today, but after a few rain drops fell during the night, the clouds moved on and now the sun shines from a clear blue sky. If no measurable snow falls here this winter it will be an aberration, said our local newspaper. 






26 comments:

  1. i am glad he is at the top, but i knew that meant his status was dire. i truly hope they can get his infection stopped and he can proceed to the next step! just love your faith and samson.

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  2. Good and bad, please try and take one day at a time. 2 weeks is a lifetime when you are waiting, and alone at home; let those loving doggies take care of you.The hospital is doing its very best, for care, priority and all else. Hugs and loving thoughts, from NZ..

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  3. I guess our prayers have been answered. That is such good news to bring hope.

    My husband has lot of stuff he has accumulated over the years and he keeps everything too.
    I'm looking forward to the next update.
    Sending you some big hugs full of hope and healing thoughts.
    Hugs,
    JB

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  4. Continued prayers coming to you and your husband for peace, comfort and restored health!!

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  5. Thanks for the update, Inger! Praying for your husband's infection to clear soon so that he can get the transplant and back home to you. The dogs are beautiful as always, and I'm sure they are much company to you during this difficult time. Take care and get as much rest as possible. Hugs from Oklahoma! ~Jeff

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  6. We are all here for you and your husband, Inger. First to clear the infection, then a new liver. I know everything is being done. Cyber hugs to you.

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  7. I really love Samson's photos. Faith reminds me of my first dog, Shorty. I know how twisted your heart and emotions must be from all of this. It is always hard to wait. Rest a bit more, Inger. Your husband needs you not to get sick!! Heck, you need you not to get sick!! :-) Samson looks the type you could hug. Poor Faith sleeping upon Samson must have run herself out! I pray for you day and night! Roland

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  8. It is great that he is on top of the list, but I know it is a hard price to pay to get there. I hope they can get his infection treated and he can go get that liver. Love and hugs. sandie

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  9. I hope all goes smoothly for your husband and for the liver transplant. How exhausting for you, physically and emotionally. Nice your sweet dogs keep you company.

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  10. wow. Inger, youre right in the middle of it. So not easy. Im hoping that they get this infection beaten down quickly so he can get that transplant. And that he isnt in massive pain anymore...And leave it to a good spouse to clean up what needs to be cleaned up :) You are a great spouse!

    And HAPPY BIRTHDAY FAITH!!!!

    xoxo

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  11. What a roller coaster you are on. No wonder you are exhausted. Make sure you get enough rest and take care of yourself as well. We will continue praying for your husband; that he has the strength to continue his fight against this infection and that they find a compatible liver soon.

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  12. Continuing to wish healing for your husband and hope that all goes well as soon as possible. I continue to remind myself that patience is all we have to work with sometimes. You have my sympathy, as I understand some of what you're going through. Remember your own health issues, and keep the faith.

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  13. I fully understand your title now, it is great news, good news and bad news all at the same time. thanks for the update and I pray for that infection to go away and a liver match to come soon after.. i know this is hard for you with him so far away and the pups needing your attentinon. i said a big awwww at Faith and her faithful pillow, Samson. they are so beautiful, both of them. i like the edit of Samson at the end. hugs to all of you

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  14. Dear Inger - I'm so pleased he's being so well looked after - and you must be really struggling, especially as you're not nearby: I've been thinking of you and do hope all will go according to plan ... I'm glad family are around and you have the dogs at home ... with many thoughts and lots of hugs - Hilary

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  15. Inger, glad to hear that he is at the top of the list. He sounds like a fighter! Praying for him, and for you, to have the strength to keep moving forward.

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  16. I know these two loving companions you have are helping you get through this most difficult time.

    Going through old boxes of momentos sometimes is wonderful and full of sentiment. Sometimes, though, it makes you wonder why we hold on to some things.

    You and your husband are in my thoughts and I am so glad that you take your precious time to write these updates for us.

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  17. That was a mixed bag of blessings. I am so glad he is at least first in line for the next liver. I will now pray that the infection can be whipped quickly so he can get on with the healing. Take care of yourself and lean on your friends. They want you to.

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  18. So happy you have these beautiful dogs near you to help you through this, Inger. What beautiful photos of them.
    Your husband is in good hands now. they will do their utmost to get him back to health and to you and the dogs.
    Sending you all the healing energy we can along with positive thoughts/prayers.

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  19. That is wonderful news Inger .... I hope now that his infection improves.
    Your two faithful companions are beautiful - you need the rest, and they are perfect to doze off with and keep you calm.
    Best wishes for the coming weeks
    Fil

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  20. Sending prayers and thank you for the update.
    xx oo
    Your companions are so beautiful and I am glad you have them.
    Carla

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  21. Thinking of you and your husband as you are going through these difficult times. Good to know that he is on the top of the transplant list. Hope you are able to get some rest.

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  22. Dear Inger, you and your husband and Debra and her family and all those who are part of your husband's team at the hospital are in my thoughts and prayers. I'm seeing you all--and Samson and Faith also in a great halo of healing white light that envelopes all of you and pours through you bringing strength. Peace.

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  23. I'm encouraged that a liver transplant is now a very real possibility. Getting on the list is very hopeful. My prayers continue, dear Inger. ox (Debra, breathe lighter)

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  24. I am praying for your husband. May he soon have a transplant, he sounds like a fighter. I hope you are looking after yourself as best you can, thinking of you always x

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Thanks for leaving a comment.. ~~ Inger

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